On March 5th, my baby girl, Lexi finally received the surgery that we knew she had needed for so long now. The procedure performed was a fundoplication and the gastrostomy. The fundoplication essentially wrapped the top part of Lexi's stomach around her esophagus and stitched into place. This was done in hopes that she would quit aspirating, giving her lungs a chance to heal. The g-tube was placed because Lexi has essentially quit eating and drinking and this gives us the means of feeding her via her stomach by iv feed.
Before Surgery
The surgery was an absolute stress-nightmare. We turned Lexi over at 7A.M. and did not get her back until 2P.M. I was pacing the floors like a mad woman, freaking out over each hour that passed. We had an angel of a nurse that day. She constantly called and reassured me that everything was great. They gave trusty pup dog a g-button, too! Recovery has been quite rough...the hospital stay was the easiest part of the whole ordeal. Coming home has been quite the test.
We have had several scares with the tube placement including puss-like discharge and bleeding. We have had three ER visits and four doctor office visits in just two weeks. Every time we have been reassured that this is normal (although it certainly doesn't seem that way). Lexi, however, has been such the trooper and is taking the tube with stride other than the awful constipation that has followed. That has actually been the worst part of the whole thing. On April 11th, we go back to have the mic-key button placed so I will be super excited when that happens.
I am still very sad that Lexi is not eating. She is still losing weight and it scares me to think that she could still be so malnourished even though we did the operation and are feeding her. It is like her body just does not care what we do; it is making all of the calls. So I pray so hard that God heal whatever it is within this precious child and give her a normal childhood.
Saturday, Make a Wish visited with the girls about a possible trip to Disney which has everyone super excited!!! I just want to tell you all how much we love and appreciate all of you and your prayers for our girl. It means more than you could ever imagine. We owe each of you a Ferrari after this is over! God bless each of you. xoxoxo
The Cantrells
